Ireland’s National Strategy for Genetics and Genomics: 6th September 2022
Dear Colleague,
Thank you, again, for your interest in the development of Ireland’s National Strategy for Genetics and Genomics. Attached you will find the slide deck and comments collected from the Information Seminar and Forum for healthcare professionals held on Tuesday, September 6th, 2022. You may also watch the recording of the event on YouTube at this link: https://youtu.be/iUtaCVPz-G4 Please feel free to share this information among your networks. It’s also available as a PPP: Slide set and Chat Record.
During the seminar, we also posed questions to the audience as part of a quick poll to gauge perceived priorities in the development of the national strategy. For your own information, below is a snapshot of the results.*
Which of the below priorities are most urgent for improving Ireland’s genetics/genomics service FOR SERVICE USERS? (please select three):
| Which of the below priorities are most urgent for improving Ireland’s genetics/genomics service FOR SERVICE USERS? (please select three) | ||
| Expanded testing options | 11 | |
| Increased testing availability | 20 | |
| More genetic/genomic literacy at all levels of healthcare | 17 | |
| Increased support services (i.e. genetic counselling) | 20 | |
| Public awareness raising about genetics/genomics | 7 | |
| Policies to protect patients’ rights | 3 | |
| Advanced data collection and availability of data for research | 9 | |
| Which of the below priorities are most urgent for improving Ireland’s genetics/genomics service FOR HEALTHCARE PROFESSIONALS? (please select three) | ||
| Create new genetics/genomics specialist roles and career paths | 15 | |
| Hire more genetics/genomics specialists to support the service | 15 | |
| Expand testing options | 9 | |
| Increase testing availability | 8 | |
| Improve laboratory systems/structure | 17 | |
| Increase genetic/genomic literacy among non-specialists | 6 | |
| Create stronger linkages between relevant disciplines (labs, clinical genomics, genetic counselling, etc.) | 12 | |
If you have any questions or would like to provide suggestions or observations to the Working Groups developing the strategy, based on your experience and area of expertise, please feel free to submit them to StrategicProgrammes.CCO@hse.ie.
Your continued engagement and feedback will add considerable value as we carry forth this very important work to enhance Ireland’s genetics and genomic service.
Kind regards,
Joyce
*Please note: A previous version of this email was sent with graphics of this data and may have been undelivered by some email systems. Apologies for the repeat email if you have received both.
Joyce Matthews
Communications Officer Strategic Programmes
HSE Office of the Chief Clinical Officer, Dr. Steeven’s Hospital, Dublin 8. D08 W2A8
StrategicProgrammes.CCO@hse.ie